Tyler’s Hope for a Dystonia Cure appoints Shannon Domeier Sumerlin as Executive Director

Press release from Tyler’s Hope for a Dystonia Cure

ALACHUA, Fla. – Tyler’s Hope for a Dystonia Cure announces the appointment of Shannon Domeier Sumerlin as its new Executive Director. Sumerlin brings more than 20 years of experience in mission-driven advancement, strategic partnerships, and experiential fundraising.

Sumerlin most recently served as Executive Director of Corporate Partnerships at the University of Florida In that role, she led the university’s first comprehensive corporate engagement strategy and spearheaded the multi-year partnership with the Jacksonville Jaguars, increasing UF’s reach on the international stage through strategic, high-profile partnerships.

Rick Staab, President and Founder of Tyler’s Hope for a Dystonia Cure, emphasized the impact of this leadership transition, saying, “Shannon brings a level of expertise and vision that will significantly strengthen our work at Tyler’s Hope and strategically expand our reach and impact. Her background in building high impact partnerships and advancing major initiatives will help us push progress forward faster than ever. We are very pleased to have her on board and look forward to the momentum she will bring.”

Together, these perspectives reflect the foundation’s commitment to accelerating research and strengthening its local, regional, and national impact.

Sharing her enthusiasm for the role, new Executive Director Shannon Sumerlin noted, “What inspires me most about Tyler’s Hope is the combination of heart and scientific momentum driving this mission forward. This foundation has united families, advocates, and world class researchers who are pushing toward real breakthroughs. I’m excited for the opportunity to help strengthen those efforts, expand our partnerships, and accelerate the progress that will bring us closer to effective treatments and a cure.”