Reps. Cammack & Magaziner, Sens. Capito & Markey introduce Alleviating Barriers To Caregivers Act (ABC Act)

Press release from U.S. Representative Kat Cammack

WASHINGTON, D.C. — Today, Rep. Kat Cammack (R-FL-03), Rep. Seth Magaziner (D-RI-02), Senator Shelley Moore Capito (R-WV), and Senator Ed Markey (D-Mass.) introduced the Alleviating Barriers to Caregivers Act (ABC Act).

The legislation would require the Centers for Medicare and Medicaid Services (CMS), Social Security Administration (SSA), and Children’s Health Insurance Program (CHIP) to review their eligibility, processes, procedures, forms, and communications to reduce the administrative burden on family caregivers. The legislation would then require CMS, SSA, and CHIP to report to Congress after two years about any issues they are facing and any next steps they are taking to support family caregivers. 

Family caregivers serve as a primary source of support for seniors and people with disabilities of all ages. In the United States alone, there are more than 48 million family caregivers. More than half of family caregivers act as an advocate for their loved one with care providers, community services, or government agencies. However, one in four family caregivers say they want help with forms, paperwork, and eligibility for services. Many report competing responsibilities while experiencing serious emotional, physical, and finance challenges.

“America’s family caregivers work around-the-clock to provide essential care for their loved ones, and over half act as advocates on behalf of their family members. The last thing these caregivers need is more red tape that distracts from their support for those in their care,” said Representative Cammack. “I’m honored to introduce this bipartisan and bicameral ABC Act with my colleagues to lower the burden around the important medical decisions caregivers must make every day. Together we can support the 48 million caregivers that make up a critical part of our health care landscape in the U.S.”

“Family caregivers have a lot on their plates, devoting their lives to support others,” said Representative Magaziner. “They shouldn’t have to struggle with confusing paperwork and delays on top of their essential work. The bipartisan ABC Act will make it easier for families to get the support they need so caregivers can focus on what matters most — caring for their loved ones.”

“More than 1 in 4 Americans over 50 are now caregivers. I was one of these caregivers for my parents during their struggle with Alzheimer’s disease and know personally how hard it can be to balance all of the responsibilities put on individuals caring for their loved ones,” Senator Capito said. “One of the most common frustrations I hear from caregivers in West Virginia is how difficult it is to navigate federal processes and procedures. The Alleviating Barriers for Caregivers Act would attempt to ease this often-stressful time by requiring federal agencies, such as the Centers for Medicare and Medicaid Services and Social Security Administration, to review their processes, procedures, forms, and communications to reduce the administrative burden on family caregivers.”

“Caregivers, like my father was, serve on the frontlines of our nation’s healthcare system by giving our families and friends the care and support they need to remain in their homes and communities with their loved ones,” said Senator Markey. “But caregivers are struggling needlessly to navigate complex, burdensome, and stressful processes each and every day while also still managing day-to-day family and professional responsibilities. The Alleviating Barriers for Caregivers Act will help lift the weight off caregivers by clearing the red tape that so often gets in their way. I thank Senator Capito and Representatives Magaziner and Cammack for their partnership on this critical legislation.”

Cosponsors in the Senate include John Hickenlooper (D-Colo.), Cindy Hyde-Smith (R-Miss.), Richard Blumenthal (D-Conn.), Thom Tillis (R-N.C.), Amy Klobuchar (D-Minn.), Rick Scott (R-Fla.), Tammy Baldwin (D-Wis.), Cynthia Lummis (R-Wyo.), Mark Kelly (D-Ariz.), Katie Britt (R-Ala.), Mazie Hirono (D-Hawai’i), Mike Rounds (R-S.Dak.), Sheldon Whitehouse (D-RI), Bill Cassidy (R-La.), Chris Coons (D-DE), and Eric Schmitt (R-Mo.).

Cosponsors in the House include Jimmy Panetta (D-CA-19), Jeff Van Drew (R-NJ-02), Steve Cohen (D-TN-09), Nick Langworthy (R-NY-23), Sharice Davids (D-KS-03), Rob Wittman (R-VA-01), Josh Gottheimer (D-NJ-05), Jen Kiggans (R-VA-02), Jared Golden (D-ME-02), Greg Steube (R-FL-17), Deborah Ross (D-NC-02), August Pfluger (R-TX-11), Ed Case (D-HI-01), Nicole Malliotakis (R-NY-11), Debbie Wasserman Schultz (D-FL-25), Mike Lawler (R-NY-17), Darren Soto (D-FL-09), and Vern Buchanan (R-FL-16).

Read the text of the bill here.

The ABC Act is endorsed by: AARP, ADA Watch/Coalition for Disability Rights & Justice, Aging Life Care Association, Alliance for Aging Research, Alliance for Retired Americans, Allies for Independence, ALS Association, Alzheimer’s Foundation of America, American Academy of Nursing, American Association on Health and Disability, American Heart Association, American Network of Community Organizations and Resources (ANCOR), American Psychological Association Services, American Society for Transportation and Cellular Therapy, American Society on Aging, Association for Frontotemporal Degeneration, Association of University Centers on Disabilities, Autism Society of America, Autism Speaks, Caregiver Action Network, Caring Across Generations, Child Neurology Foundation, Christopher & Dana Reeve Foundation, Davis Phinney Foundation for Parkinson’s, Disability Rights Education and Defense Fund (DREDF), Diverse Elders Coalition, Elder Services of Berkshire County Inc., Elizabeth Dole Foundation, Family Caregiver Alliance, National Center on Caregiving, Fight Colorectal Cancer, Gerontological Society of America, Grayce, Greater Lynn Senior Services, Hispanic Federation, Huntington’s Disease Society of America, Japanese American Citizens League, Justice in Aging, Lakeshore Foundation, LeadingAge, LifePath, Lymphoma Research Foundation, Massachusetts Councils on Aging, Medical Alley, Mystic Valley Elder Services, National Academy of Elder Law Attorneys, National Adult Day Services Association, National Alliance on Caregiving, National Asian Pacific Center on Aging (NAPCA), National Association of Councils on Developmental Disabilities, National Council on Aging, National Committee to Preserve Social Security and Medicare, National Disability Rights Network, National Down Syndrome Congress, National Federation of Filipino American Associations, National Fragile X Foundation, National Health Council, National Partnership for Healthcare and Hospice Innovation, National Patient Advocate Foundation, National Respite Coalition, NMDP, OCA- Asian Pacific American Advocates, Paralyzed Veterans of America, Rosalynn Carter Institute for Caregivers, Senior Connection, Somerville-Cambridge Elder Services, Southeast Asian Resource Action Center (SEARAC), Speak Foundation, the Arc of the United States, The ERISA Industry Committee, The Michael J. Fox Foundation for Parkinson’s Research, Third Way, USAging, Village to Village Network, and Well Spouse Association.